Grace is an adorable three-year-old who runs around playing with her cousins like any other little girl but Grace has a condition that she shares with only 47 other people in Australia; Grace has Ataxia Telangiectasia (A-T).
A-T is a rare inherited condition that affects the nervous system, the immune system and other body systems.
Her mum, Kerry Bourke, said the diagnosis was overwhelming when she found out her little girl could face a future where she might lose the ability to speak, has a high risk of developing cancers, and could die in her 20s.
As bad as this is, Kerry and her husband met other individuals with the condition, taking comfort that some of them were over 25.
Grace has a loving family and her dad, uncles and cousin have banded together and taken on the beard challenge called Beard Up Boys to make money for A-T research.
The boys have been growing their beards since the beginning of June and have all developed very bushy thick hirsute around their chins.
The family will be holding an unbearding event at the Demo on September 3 where their beards will be shaved off.
There will also be an auction of goods donated by local businesses and if you want, you can make donations at the event.
If you would like to help the family with their fundraising, you can also donate at https://brashat.org.au/ where you can pick one of the families to donate through.
Grace’s donation is Fighting A-T with grace.
All donations are tax deductible.
Image: Grace with her family: left to right, Uncle Fred, Pop, cousin Max and Uncle Ian